NFMCPA Conference Debrief: Saturday, October 24th at 3pm

Join us for a general debrief from the NFMCPA’s 2015 conference on preventing and managing chronic pain! This event will provide an overall summary of topics and presentations. (We’ll go into greater depth into the most popular topics over the course of the following months.) Please note that we are starting at 3pm and ending at 5pm, which is different from our normal schedule. We’ll be at Fronimo’s Greek Cafe. Please feel free to bring a friend. The room has been reserved for a party of 14.

Fronimo’s Greek Cafe: 3242 E Speedway Blvd, Tucson, AZ 85716 (Across from The Loft theater)

Fronimo’s offers counter service, meaning that you will need to go to a counter to order food if you would like to do so. We ARE in their private meeting room for the presentation. :-)

2015 NFMCPA Treating and Preventing Pain: Saturday highlights

Dr. Frank Rice, Small Fiber Neuropathy in Fibromyalgia

  • Nerve conduction testing is not sophisticated enough to adequately evaluate small fibers, must use 3mm punch biopsy
  • Exercise may help the brain find better patterns to help reduce symptom severity
  • Small nerve fibers more reactive in FMS and other pain diseases
  • Epigenetic link from environmental imprinting + genetics (can possibly be reversed)


Dr. Michael Sorrell, Myofascial Medicine: Where we are and Where We Should Go

  • Many specialists should be aware of MTP’s but aren’t
    PT should stretch all affected muscles among their lengths; if this does not improve, patient should be re-evaluated
  • Trigger points (TrP’s) are electrically different from surrounding muscle tissue; sonoelastography shows TrP’s are stiffer
  • Can be used to treat some headaches and many migraines (more success with migraine without aura)


Wolfgang Bauermeister, MD, PhD, Ultrasound-Elastography: A Novel imaging technology to make trigger points visible

  • Takes 45-60 min to scan the whole body
  • “…the brain just cannot deal with [that extreme amount of pain.]”
  • Can be used anywhere on the body to break up calcified trigger points


Dr. James Friction, President International MYOPAIN Society, Preventing Chronic Pain Campaign

  • Pain costs the US an estimated $635 Billion each year
  • Protective factors like diet and exercise reduce risk factors for chronic pain
  • Having strong beliefs, compassion, and determination is the strongest protective factor involved in recovery


Dr. James Friction, President International MYOPAIN Society, Preventing Chronic Pain Campaign (workshop)

  • Risk factors are all related
  • $0.25 of every dollar spent in healthcare hours to treating diseases that result from changeable behaviors


Kim Jones, FNP, PhD,  Exercise and Nutrition

  • Muscle microtrauma more likely to occur when growth hormone levels are lower
  • FMS patients more likely to have low levels of growth hormone because of poor sleep and less
  • Exercise worked better than drug therapy to raise growth hormone levels to prevent muscle damage
  • Avoid moving your arms over your head and start low, go slow, and keep going!
  • for FMS friendly exercise


Kathleen Holton, PhD, Optimal Nutrition for FMS

  • Avoid artificial colors, processed foods and sweeteners, especially aspartame
  • Increased levels of glutamate found in brain and spinal cord of FMS patients
  • Glutamate needs to be in balance with GABA
  • Magnesium blocks NMDA channel, which helps reduce pain
  • Mediterranean diet very good for FMS


Dr. William Collinge, Aware Health System: the Fibromyalgia wellness Project

Same as previous presentation by Dr Collinge


Elizabeth Christy, author of Why Does Mommy Hurt?

  • It’s ok to let go of ideas of being the “perfect parent”
  • If you feel isolated, join a support group for parents (“Parents with Pain” on Facebook)
  • Extended periods of “role reversal,” (kids helping parents with daily living tasks) can alter normal parent-child relationships
  • Try lower energy activities like drawing, coloring, or movie parties on high pain days

NFMCPA TAP Conference: Friday highlights

Dr. Daniel Clauw, Rhuematology at U of MI (keynote speaker)

  • Fibro patients have patterns common to other soft tissue pain disorders (RA, SLE, OA)
  • Chronic Pain can actually result in positive psychological factors, like resilience from “pushing through ” pain
  • Current treatments are not adequate for RA or FM
  • NOBODY should be counting tender points anymore for any reason!
  • The new 2010 criteria can help predict OA, SLE, and other pain based on survey results (higher score = less likely that surgery or opioid will work)
  • Dry eyes in FM not actually dry eyes – is another nerve problem!


Dr. Lynn Webster, pain specialist (Effects of hydrocodone rescheduling and medical marijuana)

  • After rescheduling, 18% of patients surveyed admitted to “borrowing” another patient’s hydrocodone (this is illegal)
  • Only 39% of patients remained on hydrocodone without dosing changes
  • Cannabidiols target CB1 receptors in the CNS and CB2 receptors in the PNS


Dr. Victor Rosenfeld, Director of Neurology, South coast Medical Group (Quantitative EEG during sleep in FMS)

  • Non-restorative sleep is a hallmark of FMS
  • ~45% of FMS patients have sleep apnea, which is a very treatable condition
  • Sleep disorders very common in FMS


Dr. Andrew Holman, Rheumatologist (PC3: Positional Cervical Cord Compression)

  • Tilting your heart forward or backwards can make spinal stenosis (compression) worse, putting pressure on the spinal cord
  • Cervical trauma is common in FMS


Dr. Cory Kingston, Chiropractor (Non-invasive Rehabilitation Program)

  • Forward head posture can deplete lung capacity by as much as 30%
  • Forward head posture pulls the entire spine and body out of alignment


Dr. James Friction, President of International MYOPAIN Society (Integrative Medicine)

  • Transformative Care model results in better long-term patient outcomes
  • Need to tip the scale in favor of healing and enhancing protective factors
  • Small daily changes make a big impact (6 months to make an impact)


Dr. William Collinge (Mindfulness, CBT and symptom reduction)

  • 573 PubMed trials indicating positive effects of CBT, 63 on pain and 7 on FMS
  • CBT focuses on changing self-defeating attitudes and behaviors
  • Tracking symptoms can be a form of CBT when you focus on successes

Q& A Panel:

  • Ask your insurance company about working with a health coach, who can help you manage your care and condition. Health coaches can also educate you about your illness to help you find more effective treatments. It’s free for you.


Barbara Kornblau, JD, OTR (Living and Buying with Fibromyalgia and Chronic Pain)

  • Engaged patients have better outcomes
  • Pacing can help protect your joints and reduce likelihood of injury
  • Think of chores as exercise


Kim Jones, FNP, PhD, (Yoga and Mindful Movement)

  • Bi-directional relationship between sleep and pain
  • Controls and FMS show no differences when muscles are at rest, contraction is another story
  • Average 40 y/o FMS patient has the balance of an 80 y/o


Mary Biancalana, MS, Edu, CMTPT, LMT, (Myofascial Pain Self-Management)

  • March in place during commercial breaks to increase blood flow
  • Referred pain can cause more problems than you may think
  • Use a tennis ball, foam roller or theracane to gently relieve Myofascial Pain

2015 NFMCPA Conference: Treating and Preventing Chronic Pain

It’s conference time! Over the next two days, I’ll be posting updates and highlights from the National Fibromyalgia and Chronic Pain Association’s Treating and Preventing Chronic Pain 2015 Conference for clinicians and patients.

We will have a conference debrief on Oct 24th at 1 p m (location TBA).

2015 NFMCPA Conference

This year, our group organizer, Jess, is heading to Washington D.C., for the National Fibromyalgia and Chronic Pain Association’s conference on Treating and Preventing Chronic Pain.

Jess will be using this blog to provide conference updates throughout the weekend.  Keep checking back for more information! (The site has been down until today, and email may not be working properly yet. If you do not receive email updates from the site, it is likely a technical issue. Your email address has not been compromised.)

After Jess returns, we will have a conference de-brief on Saturday, October 24th at 1pm. Location TBD. (We may need more than one of these, so stay tuned for more info!)

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