NFMCPA TAP Conference: Friday highlights

Dr. Daniel Clauw, Rhuematology at U of MI (keynote speaker)

Fibro patients have patterns common to other soft tissue pain disorders (RA, SLE, OA)
Chronic Pain can actually result in positive psychological factors, like resilience from “pushing through ” pain
Current treatments are not adequate for RA or FM
NOBODY should be counting tender points anymore for any reason!
The new 2010 criteria can help predict OA, SLE, and other pain based on survey results (higher score = less likely that surgery or opioid will work)
Dry eyes in FM not actually dry eyes – is another nerve problem!

Dr. Lynn Webster, pain specialist (Effects of hydrocodone rescheduling and medical marijuana)

After rescheduling, 18% of patients surveyed admitted to “borrowing” another patient’s hydrocodone (this is illegal)
Only 39% of patients remained on hydrocodone without dosing changes
Cannabidiols target CB1 receptors in the CNS and CB2 receptors in the ONE

Dr. Victor Rosenfeld, Director of Neurology, South coast Medical Group (Quantitative EEG during sleep in FMS)

Non-restorative sleep is a hallmark of FMS
~45% of FMS patients have sleep apnea, which is a very treatable condition
Sleep disorders very common in FMS

Dr. Andrew Holman, Rheumatologist (PC3: Positional Cervical Cord Compression)

Tilting your heart forward or backwards can make spinal stenosis (compression) worse, putting pressure on the spinal cord
Cervical trauma is common in FMS

Dr. Cory Kingston, Chiropractor (Non-invasive Rehabilitation Program)

Forward head posture can deplete lung capacity by as much as 30%
Forward head posture pulls the entire spine and body out of alignment

Dr. James Friction, President of International MYOPAIN Society (Integrative Medicine)

Transformative Care model results in better long-term patient outcomes
Need to tip the scale in favor of healing and enhancing protective factors
Small daily changes make a big impact (6 months to make an impact)

Dr. William Collinge (Mindfulness, CBT and symptom reduction)

573 PubMed trials indicating positive effects of CBT, 63 on pain and 7 on FMS
CBT focuses on changing self-defeating attitudes and behaviors
Tracking symptoms can be a form of CBT

Ask your insurance company about working with a health coach, who can help you manage your care and condition

Barbara Kornblau, JD, OTR (Living and Buying with Fibromyalgia and Chronic Pain)

Engaged patients have better outcomes
Pacing can help protect your joints and reduce likelihood of injury
Think of chores as exercise

Kim Jones, FNP, PhD, (Yoga and Mindful Movement)

Bi-directional relationship between sleep and pain
Controls and FMS show no differences when muscles are at rest, contraction is another story
Average 40 y/o FMS patient has the balance of an 80 y/o

Mary Biancalana, MS, Edu, CMTPT, LMT, (Myofascial Pain Self-Management)

March in place during commercial breaks to increase blood flow
Referred pain can cause more problems than you may think
Use a tennis ball, foam roller or theracane to gently relieve Myofascial Pain

2015 NFMCPA Conference: Treating and Preventing Chronic Pain

It’s conference time! Over the next two days, I’ll be posting updates and highlights from the National Fibromyalgia and Chronic Pain Association’s Treating and Preventing Chronic Pain 2015 Conference for clinicians and patients.

We will have a conference debrief on Oct 24th at 1 p m (location TBA).

2015 NFMCPA Conference

This year, our group organizer, Jess, is heading to Washington D.C., for the National Fibromyalgia and Chronic Pain Association’s conference on Treating and Preventing Chronic Pain.

Jess will be using this blog to provide conference updates throughout the weekend.  Keep checking back for more information! (The site has been down until today, and email may not be working properly yet. If you do not receive email updates from the site, it is likely a technical issue. Your email address has not been compromised.)

After Jess returns, we will have a conference de-brief on Saturday, October 24th at 1pm. Location TBD. (We may need more than one of these, so stay tuned for more info!)

Common Symptoms of Fibromyalgia

Fibromyalgia  Symptoms

Workplace Accomodations

ADA accommodations FMS Day 2015

Juvenile-Onset Fibromyalgia

Juvenile FMS Day 2015 (1)

Effects of Fibromyalgia in the Workplace

Workplace Effects

Fibromyalgia Fast Facts

FMS awareness day 2015

Fibromyalgia Awareness Day 2015


Today is Fibromyalgia Awareness Day.

If you know someone with Fibromyalgia, take a minute to find out one new thing about this disease.

Fibromyalgia Awareness Day 2015

safe_imageTomorrow, May 12th, is Fibromyalgia Awareness Day. All over the globe, Fibromyalgia patients and advocates will be reaching out to their local communities to help inform the world about the differences between facts and myths.


ua med school lib mapJoin us on the University of Arizona campus in front of the Medical School library¬†all day tomorrow (starting at 9:30am). We’ll need lots of help answering questions about Fibromyalgia. We need volunteers for any length of time tomorrow.

Please bring a bottle of water and dress appropriately for the weather, as the weather forecast is currently 91* for tomorrow.


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